Tag Archives: diversity

Dare to Live

This post is about life and about giving whatever it is that you have to give. It is meant to say, “Please” to those who haven’t yet and “Thank you” to those who have and to those who will… GIVE!
Thanks to Andrea Bocelli

Dare to Live

Try looking at tomorrow not yesterday
And all the things you left behind
All those tender words you did not say
The gentle touch you couldn’t find
In these days of nameless faces
There is no one truth but only pieces
My life is all I have to give
Dare to live until the very last
Dare to live forget about the past
Dare to live giving something of yourself to others
Even when it seems there’s nothing more left to give
Dare to live searching for the ones you love
Dare to live no one but we all
Dare to live until the very last
Your life is all you have to give
Dare to live until the very last
Your life is all you have to give 
I will say no-I will say yes
Say… Dare to Give!
 

Dare to Give

Wherever you are in life and whatever you have… it’s all about living and giving. When all you can give is part of you, that may be the best that someone could ever hope to receive.

John Hudson Dilgen – A Boy

John Hudson DilgenWe have all heard motivational sayings that are meant to help us feel better about whatever ailment or adversity comes our way. Many times the attempts that others make to help us feel better succeed. Other times they don’t help and in fact they irritate us. After all we, are the masters of our own destinies. We are the only ones who can make the decision as to whether we will succumb to the obstacles we face in life or use them to make us stronger.

That all sounds good and it may even be poignant in many cases.  The subject of today’s post has temporarily imploded my usual positivity. I am confident that this will not remain the case because maybe just maybe we can help to make a difference for one very special child by the name of John Hudson Dilgen.

This is the story of eleven-year-old John Hudson Dilgen who has a rare skin disease called Epidermolysis Bullosa or EB. The disease is cruel and it ravages the delicate skin of the people who are afflicted with it. EB makes the skin so fragile that even the slightest bump or touch can rub the skin off and cause blisters and great pain.

Every morning John Hudson Dilgen must have a bath and his dressings changed. The process is pure torture for him. Each bandage must be removed and then his skin must be rinsed with bleach or vinegar to kill the bacteria that has grown on his skin overnight. After that excruciating process is over, antibiotics and moisturizers are applied. He has wounds covering over 50% of his body and he must wear special bandages continuously.

Therapists come to work with John’s hands, feet and mouth which are often blistered and painful. He cannot eat or drink until the blisters on his tongue have drained.  There are often blisters in his eyes, which are the most agonizing of all of the wounds. There is no treatment for the corneal erosions. He must keep his eyes closed and take pain medications until the erosions heal.

There is so much more to John’s story. Please check out his site and spread the word about EB.  If you are so inclined, you canJohn Hudson Dilgen send a donation to help fund research for Epidermolysis Bullosa.  As we give thanks for all that we have this Thanksgiving, let’s do something to help John’s dream come true. It’s a simple dream. It is a dream about a day in the future when he won’t have to suffer in such excruciating pain.

The following is from http://www.johnhudsondilgen.com/ 

“We are waiting for a day free from pain and suffering and worry. There is no cure for EB at this time, only bandages and pain medications.. Research going on in Stanford Ca. will go to human trials in a few years and may have hope of a treatment for RDEB. Until then, we are spending our days praying for a cure and hoping I survive the infections and anemia of childhood. I need a cure well before my first bout of squamous cell carcinoma, as this will surely kill me. If it is in your means, please help spread the word about EB, help increase EB awareness, visit my website for updates on me. Please remember me and my other EB friends in your prayers. Tomorrow is another day and my family continues to hold out hope for a better day for me.” ~ John Hudson Dilgen

To get involved, contact Faye at johnhudsondilgen@aol.com.

“We never stand taller than when we kneel to help a child.”  It goes without saying that John is our newest hero on our Wall of Heroes. Please keep him in your prayers.

Rion Paige Blows Judges Away

We have heroes here as those of you regulars know.  We are adding Rion Paige to our hero wall because she has what most heroes have… humility, courage, positivity and a desire to overcome adversity. If you are one of the few people who has not heard about this amazing contestant on the X Factor,Continue Reading

Teach Kids that Cool Kids Should Be Kind Kids

School is starting and as a parent, you are really proud that your kids are the popular and cool ones, right? Of course you are and why should it be any other way? You were a cool and popular kid when you were young so why wouldn’t your children be? After all, the “geeky” parentsContinue Reading

Our Heroes Are Everyday People Who Make a Difference

One of the things that we try to do here is share stories about people who do something that many people wouldn’t or couldn’t do. Our heroes make a difference for someone or for many and they come from every walk of life and every age. It is for that reason, we have created Rugby’sContinue Reading

Lost: One More Bullied Kid

Seventeen year old Carlos Vigil of Valencia County, New Mexico has now become a statistic. He tried to make a difference for bullied kids but attempted suicide himself. The image below is the last Twitter message that Carlos sent. He was taken off of life support yesterday. Even though people were aware that he wasContinue Reading

Suggestion Boxes

Kids don’t want to tell adults about important things because they can’t trust that the adults will not let everyone know the kid who “told.” All it takes to have kids turn on a kid who tries to do the right thing by reporting an important event is to have the adult tell others thatContinue Reading

Just an Innocent and Loving Child: Adalia Rose

Our newest hero is Adalia Rose Williams. She is a bright, funny, talented, loving and courageous little girl. Her life would be perfect except that one thing makes a perfect life out of reach for her. Amelia suffers from a premature aging condition called Progeria. The condition is called Hutchinson-Gilford Progeria Syndrome and it occursContinue Reading

What Is Autism?

The purpose of today’s post is to give readers who don’t know much about Autism, some important information. For those of you who have a child or adult with Autism in your lives, our next post deals more with perspective and hope. Autism is a developmental disorder that occurs in the first 3 years ofContinue Reading

Rules Kids Should Live By

Take pride in who you are. Stand with your shoulders back and your head held high. Tell the truth. Be loyal. Find an adult who you trust. Remember that being different is okay. Always do the best you can do even if others can do things better. Failing can be a good thing if youContinue Reading